Board

Caroline Lietaer (France)

President

Wilfried Asthalter (Germany)

Treasurer

Danijela Szili
(Hungary)

General Secretary, RareConnect moderator and EURORDIS DITA Task Force member

Yvonne Milne
(United Kingdom)

Board member of ERN ITHACA and EURORDIS elected ePAG representative

Stella Peckary
(Austria)

Minutes Secretary and RareConnect moderator

Other precious Volunteers, non Boardmembers

Laura Kanapieniene
(Lithuania/Spain)

Webmaster, questionnaire Rett Centers Europe

  • Thomas Bertrand: international independent adviser Rett Syndrome Europe, former president
  • Gérard Nguyen: international independent adviser Rett Syndrome Europe, former president
  • Tim Addison: reviewer of Articles Rett Resource (English language) – R.I.P., our sincere condolences for your family.
  • Tim Lang: designer Rett Resource