Author: Caroline Lietaer

Rett Syndrome Europe is happy to give you an overview of the interesting resources which are available and organized by different associations in different languages in these period of lockdown ALL LANGUAGES Free games in all languages:  Gazeplay is a free and open-source software which gathers several mini-games playable with an eye-tracker : https://github.com/GazePlay/GazePlay ENGLISH […]

by Stella Peckary In Hipping, close to the lake Attersee, 22 Rett families with their girls/boys and siblings met on a sunny weekend in June. The Board of ÖRSG met on Friday afternoon for planning the organisation of upcoming events 2019/2020 and welcomed a new Board member – Elisabeth Nimmerrichter, who will also take over […]

AIRett devoted the first two days of June to its periodical National Congress organized this year in Cervia – “New Borders in Rett Syndrome: a Glance towards the Future” – with novel therapeutic international strategies being the main theme of the Conference. Rett families as well as experts interested in the syndrome (more than 250 […]

We congratulate Dr. Gillian Townend with her successful PhD defense the 4 th of July at the University of Maastricht Rett Syndrome: “Recognising the Communication Challenges, Needs and Potential of Individuals Living with a Rare Disease” It was an honour to be there and we would like to express our gratitude in name of all […]

The Rett Disorders Alliance UK (Reverse Rett, Rett UK and FOXG1) are delighted to bring you The Rett Syndrome Health Checklist. The Health Checklist provides information to help with symptom identification and management including suggestions for drugs which may help and those which may cause difficulties for people with Rett syndrome. There are also links […]

The Rett Syndrome Association (Russia) has been implementing a project on creating Rett syndrome resources in Russian language since 2017. The start to the project was given by the VIII World Congress on Rett syndrome, which was held in Kazan in May 2016. In 2018, within the framework of the “Mutual Support” project (winner of […]

The Association of Parents and Friends of People with RETT Syndrome “Angels on Earth” is a non profit organisation, which aims to undertake every activity that will help people with RETT Syndrome and their parents. The association was created in 2011. The main goals of the association include: a) support and information for the families […]

Rett Syndrome Association of Australia is looking for potential presenters by tapping into the local knowledge of member Associations. We would welcome the names, contact details and specialities of those persons in your part of the world, whom it is strongly felt would have something to present which would be of benefit to those involved […]

            RSE held its general assembly on 26/10/2018 to present the activity report and to discuss future plans. This year’s GA meeting took place in Copenhagen, Denmark. Our friends from Landesforeningen Rett Syndroms hosted the meeting and kindly arranged the organisation of the two days To make it more interesting, […]

The French national days for Rett syndrome celebrated the 30 years anniversary of the French Rett Association. There were 223 participants. We could see in the corridor a nice overview of the history of the association. As usually the themes presented were very interesting: you can see the program in the picture. A surprising and […]