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RSE Seasons Greetings

May health and happiness be yours in all seasons!

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Rett UK bangs the drums for families in South East England

November 10th saw over 180 people from the South East of England, arriving at The School for Profound Education at the Children’s Trust in Tadworth. Families, specialist medical and therapeutic practioners, staff and board members of Rett UK took part in the largest gathering of the Rett Community in England for many years.   There […]

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The 2012 RSE General Assembly

  The 17th November took place the Rett Syndrome Europe general assembly in London, UK where Lorna Jaffa, representative from RettUK, welcomed the delegates to the meeting. 14 countries were represented that day and two researchers; Angus Clarke and Laurent Villard were also invited. Member countries each gave a brief report about their associations. Martine […]

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6th annual DIA Clinical Forum

DIA Clinical Forum in the Hague 2012 – A report from Danijela Szili For more info check http://www.pharmaceutical-technology.com/contractors/consult/dia1/ DIA is a neutral global nonprofit association that provides knowledge resources across the full spectrum of medicinal product development. It organizes Conferences and Forums for all the stakeholders including patient advocates. This years Clinical Forum took place […]

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First EUPATI Workshop

EUPATI (European Patients’ Academy on Therapeutic Innovation), is a 5 year-project funded by the Innovative Medicines Initiative (IMI), a joint undertaking of the European commission and EFPIA (European Federation of Pharmaceutical Industry Associations). It is led by the European Patients’ Forum (EPF) in collaboration with the VFA (Verband der Forschenden Arzneimittelhersteller, Germany) and a consortium […]

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