Archive | Conferences

RSS feed for this section
Capture d’écran 2015-04-14 à 07.48.03

European Conference in Rome – a message from the RSE board members

Dear Members of the Rett Community, We are very proud to inform you that the next Rett Syndrome European Conference will take place in Roma from 30th of October to 1st of November 2015. This Conference is organized by the Italian Rett Syndrome parents Association AIRETT, with the help of Rett Syndrome Europe. On this occasion, we […]

Read full story Comments are closed
18190667890_bd523e0c95_o

Eurordis Membership Meeting 2015

By Danijela Szili. Each year, the EURORDIS Membership Meeting provides over 200 patients, patient organisations, policy makers and other stakeholders with networking opportunities and capacity-building workshops to improve the lives of those living with a rare disease. The EURORDIS Membership Meeting workshops are designed to allow patients to develop the knowledge and ability to advance […]

Read full story Comments are closed
Capture d’écran 2015-04-27 à 14.43.06

5th Catalan Rett Syndrome Day

The Quirón Foundation, with the help of the Catalan Association for Rett Syndrome, organized the fifth edition of the Conference on Rett syndrome, with the aim of providing care for girls, the necessary information for early diagnosis and better treatment of the disease. This new edition, which took place on Saturday, April 11 in Barcelona, […]

Read full story Comments are closed
Capture d’écran 2015-04-14 à 07.48.03

Registration for the 4th European Congress on Rett Syndrome in Rome is now open

Read full story Comments are closed
Capture d’écran 2015-04-06 à 14.15.26

2015 Congress for Consensus in Pediatrics & Child Health

The 4th Global Congress For Consensus in Pediatrics & Child Health (CIP2015) took place March 19-22 in Budapest, Hungary. Dr Gerard Nguyen was representing Rett Syndrome Europe, the French Rett Syndrome Association and the Hungarian Rare Diseases Alliance. Dr Nguyen gave a talk entitled “Rare Diseases: From Best Care to Innovative Cure”. The presentation pointed […]

Read full story Comments are closed
group_ps

Dankeschön! Read the 2014 RSE general assembly summary

On November 15 we held our annual General Assembly meeting of Rett Syndrome Europe in the beautiful city of Vienna. Our Austrian friends from ÖRSG hosted the meeting and kindly arranged the organisation of the day. We had the pleasure to have most of the European associations representing Rett syndrome present, plus the Russian Association, […]

Read full story Comments are closed
_G9A7043

4th Catalan Day on Rett syndrome in Barcelona

By Jordi Serra and Thomas Bertrand. On 8th March, took place at the Centro Médico Teknon in Barcelona, the 4th Catalan day on Rett Syndrome. This year the main topic was “From Research to Assistance in Adulthood”. Rett Syndrome is a neurological disorder that occurs mainly in girls. It is caused by altered regulatory process […]

Read full story Comments are closed
Capture d’écran 2014-05-29 à 10.48.03

7th European Conference on Rare Diseases & Orphan Products

7th European Conference on Rare Diseases & Orphan Products 8-10 May 2014 – Berlin Germany By Danijela Szili and Thomas Bertrand. The ECRD conference was organised by Eurordis and co-organised by DIA. It gathered more than 750 stakeholders including patient representatives, health professionals, scientists, industry, policy makers, regulators and payers from 40 countries. The first […]

Read full story Comments are closed
Capture d’écran 2013-12-04 à 22.02.08

Save the date: The 7th European Conference on Rare Diseases & Orphan Products

ECRD 2014 – 8 to 10 May 2014 Andel’s Hotel, Berlin, Germany Save the date! more infos here.

Read full story Comments are closed
IMG_0209 (group)_940x350_scaled_cropp

3rd European Rett Syndrome Conference “Research Update and Preventive Management”

By Martine Gaudy and Thomas Bertrand – Maastricht – Netherlands – 17 to 19 October 2013 After those of Milan (2009) and Edinburgh (2010), the third European Rett Syndrome Conference (ERSCM 2013) was held in Maastricht in the Netherlands. ERSCM 2013 is an initiative of the GKC (Gouverneur Kremers Centrum), Stichting Terre (Dutch Rett Syndrome Foundation) and NRSV (Dutch Rett Syndrome Association) […]

Read full story Comments are closed