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AAC conference in Budapest

By Danijela Szili. The two-day conference (6-7 February) was organized in Budapest by the Hungarian Rett Syndrome Foundation, Hungarian Angelman Syndrome Foundation and Kapcsol-At Kft. who are the official Tobii distributers in Hungary. It was a huge event with almost 300 participants. Most of them were therapists from all over the country working with nonverbal […]

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8th World Congress on Rett Syndrome – Registration continues!

By Olga Timutsa Dear Friends, please note that the registration for the World Congress on Rett syndrome to be held on 13-17 May 2016 in Russia, Kazan continues. All the necessary information can be found at Kazan is a beautiful and hospitable city with 1000 years of history. Many cultures, religions, traditions meet here in […]

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Charity concert “For Silent Angels” in Poland

On 22nd of December Polish Rett Syndrome Association in cooperation with Kraków City Council organized a special charity concert “For Silent Angels” in Kraków, in ICE Kraków Congress Center. It were wonderful two hours full of the best music – classical, rock and folk. For our Silent Angels played Sinfonietta Cracovia, Grzegorz Majzel and folk […]

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yvonne and lorna

Rett UK celebrating their 30th Anniversary

From left to right – Rachael Stevenson (Reverse Rett), Mark Bailey, Becky Jenner and Stuart Cobb By Becky Jenner. Rett UK were delighted to celebrate their 30th Anniversary with a Family Weekend at the Hilton Hotel in Northampton. Attended by over 200 families and professionals representing key disciplines across health,  therapeutic interventions and research the weekend had […]

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RTT50.1: Celebrating the 50th anniversary of the first publication on Rett Syndrome by Andreas Rett

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Share your Stories #WWYG

It is not too late! Let’s make October awareness month a success! Tell the world WHY WOULD YOU GIVE to Rett syndrome charities/associations. If you wish that people support your organisation, ask them to share what would motivate them to give, whether it’s running a marathon, signing a check, organising an event or taking part in a clinical trial. If you […]

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Czech Republic Association family event

By Michal Kozisek. The 8th Rett Community Czech Family event took place from June 27th to July 4th at Hodonin near Kunstat in the Moravian region. We have set a record this year. More than 80 people – 15 families with Rett syndrome girls, 16 caretakers and other organisers. Rich 7-days programme contained: –          Presentations and workshops for […]

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La Course Des Héros 2015, Paris & Lyon, France

In Paris and Lyon, June 2015 took place the annual event of The Race of Heroes (La Course des Héros), where people can run 6 or 10 km to raise money for their favorite association. The idea is simple, to be able to run and support one association, one would need to raise at least […]

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Austrian Rett-Syndrome Association Family weekend

By Stella Peckary. This year again many Rett-families joined a common weekend. 19 Rett-Girls and boy had their own attendant. This gave us parents the chance to attend the program. We all were lucky with the weather, so many of the attendants took the chance to go for a walk with the girls. On Friday […]

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Countdown to the 2016 World Congress on Rett syndrome

The Athletics Marathon will be held in Kazan on May 10, 2015. As part of the Kazan marathon held Championship of Russia among the youth marathon. Championship of Russia among the youth marathon will be held in the framework of the Kazan marathon. There will be races for 42.195 km 21.097 km and 5 km. […]

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