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Rehabilitation camp for people with Rett Syndrome at Zabajka Hippotherapy and Rehabilitation Centre in Stawnica 2016

On 3-16 June 2016, Polish Rett Syndrome Association organised a rehabilitation camp for children with Rett Syndrome at Zabajka Hippotherapy and Rehabilitation Centre in Stawnica. As many as 21 girls participated in this event. The youngest participant was 2.5 years old, whereas the oldest one was 11. Similarly as two years before, some of the […]

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European Conference on Rare Diseases and Orphan Products 26-28 May 2016 (Edinburgh)

By Danijela Szili. Around 750 participants from the countries all over the globe gathered in Edinburgh at the EICC (Edinburgh International Conference Centre) for the EURORDIS Membership Meeting (EMM) and 8th European Conference on Rare Diseases and Orphan Products with a slogan Game Changers in Rare Diseases. The 26th of May was reserved for the […]

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28th French Rett Syndrome Association family weekend

For the 28th time, the Rett Syndrome French Association (AFSR) organised their family weekend days which took place in the “Center Parcs” of Sologne from 3 till 6 of June. 361 attended the weekend, 90 families, 83 Rett girls and 1 Rett boy. The families stayed in nice cottages surrounded by trees and had the opportunity to […]

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AAC conference in Budapest

By Danijela Szili. The two-day conference (6-7 February) was organized in Budapest by the Hungarian Rett Syndrome Foundation, Hungarian Angelman Syndrome Foundation and Kapcsol-At Kft. who are the official Tobii distributers in Hungary. It was a huge event with almost 300 participants. Most of them were therapists from all over the country working with nonverbal […]

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8th World Congress on Rett Syndrome – Registration continues!

By Olga Timutsa Dear Friends, please note that the registration for the World Congress on Rett syndrome to be held on 13-17 May 2016 in Russia, Kazan continues. All the necessary information can be found at worldcongress2016.rettsyndrome.ru Kazan is a beautiful and hospitable city with 1000 years of history. Many cultures, religions, traditions meet here in […]

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