Events

Next European Rett Syndrome Congress – Berlin 2017

Dear Rett Community, we herewith like to inform the Rett-Syndrome Family, that the German Rett-Syndrome Association will organize the next European Rett-Syndrome Congress (ERSC) in Germany. The Congress will be placed in Berlin from 02. – 04. November 2017. During this event the German Rett-Syndrome Association will celebrate their 30th years anniversary. Further information will follow in due time. […]

AAC conference in Budapest

By Danijela Szili. The two-day conference (6-7 February) was organized in Budapest by the Hungarian Rett Syndrome Foundation, Hungarian Angelman Syndrome Foundation and Kapcsol-At Kft. who are the official Tobii distributers in Hungary. It was a huge event with almost 300 participants. Most of them were therapists from all over the country working with nonverbal […]

Charity concert “For Silent Angels” in Poland

On 22nd of December Polish Rett Syndrome Association in cooperation with Kraków City Council organized a special charity concert “For Silent Angels” in Kraków, in ICE Kraków Congress Center. It were wonderful two hours full of the best music – classical, rock and folk. For our Silent Angels played Sinfonietta Cracovia, Grzegorz Majzel and folk […]

Rett UK celebrating their 30th Anniversary

From left to right – Rachael Stevenson (Reverse Rett), Mark Bailey, Becky Jenner and Stuart Cobb By Becky Jenner. Rett UK were delighted to celebrate their 30th Anniversary with a Family Weekend at the Hilton Hotel in Northampton. Attended by over 200 families and professionals representing key disciplines across health,  therapeutic interventions and research the weekend had […]

Share your Stories #WWYG

It is not too late! Let’s make October awareness month a success! Tell the world WHY WOULD YOU GIVE to Rett syndrome charities/associations. If you wish that people support your organisation, ask them to share what would motivate them to give, whether it’s running a marathon, signing a check, organising an event or taking part in a clinical trial. If you […]

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