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First EUPATI Workshop

EUPATI (European Patients’ Academy on Therapeutic Innovation), is a 5 year-project funded by the Innovative Medicines Initiative (IMI), a joint undertaking of the European commission and EFPIA (European Federation of Pharmaceutical Industry Associations). It is led by the European Patients’ Forum (EPF) in collaboration with the VFA (Verband der Forschenden Arzneimittelhersteller, Germany) and a consortium […]

Rett family conference in Moscow

On September 15th, in Moscow, the Russian association has organised a Rett family conference day where parents, doctors and teachers were invited. 65 Parents coming from all places in Russia as well as from Ukraine and from Kazakhstan were involved. Some Rett Friends from France and Finland were also present. Organizers of the conference were […]

Summer Camp for Rett Girls in Hungary

By Danijela Szili. This event took place during the first week of July in a little town called Agard on the Velencei Lake near Budapest. The Hungarian Rett Syndrome Foundation made this special holiday for Rett girls possible. We rented a house near the beach on the lake. The house was well equipped, with enough […]

RSE and Rett Syndrome Associations from all over the world were present at the 7th World Rett Syndrome Congress in New Orleans

RSE and Rett Syndrome Associations from all over the world were present at the 7th World Rett Syndrome Congress in New Orleans. Rett Syndrome Europe was present at the 7th World Rett Syndrome Congress hosted by IRSF, International Rett Syndrome Foundation, in New Orleans. RSE was represented by Martine Gaudy, RSE Secretary and Thomas Bertrand, […]

The 2012 World Rett Syndrome Congress

The 2012 World Rett Syndrome Congress, hosted for the first time in the United States, is a prestigious global meeting, attended by the world’s leading researchers, clinicians and educators in the field of Rett syndrome. It will consist of 4 distinct, yet interconnected meetings June 22-26, 2012. This dynamic program will help chart the course […]

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