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Capture d’écran 2017-03-15 à 22.59.29

Rett syndrome is in the ERN called ITHACA

European Reference Networks (ERN) have started this month! Check out this nice video on European Reference Networks for rare and complex diseases. As a reminder Rett syndrome is in the ERN called ITHACA, which stands for Intellectual disability, TeleHealth And Congenital Anomalies http://europa.eu/!Dc93bF

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Capture d’écran 2014-12-09 à 20.08.01

We are Happy from AFSR

French Rett girls, joy, happiness and cool music! The French Rett Association (AFSR) is proud to share its own version of the “Happy” video clip from Pharell Williams. Enjoy! Rett Syndrome is the first cause of genetic multiple-disability hitting girls in France. There is no known cure as of today despite a better understanding of […]

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Rett Syndrome Europe Video

Rett Syndrome Europe Video

Watch our new video!

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