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Greece: “Rare disease day 2019”
February 24 @ 10 h 00 min - 14 h 00 min
The Association of Parents and Friends of People with RETT Syndrome “ANGELS ON EARTH” is a non profit organization, which aims to undertake every activity that will help people with RETT Syndrome and their parents. Within the framework of the Rare Disease Day, we will organize a series of events in order to raise awareness about RETT Syndrome. The first one is an interactive event with the title “Your piece of the puzzle”, which will take place on Sunday, 24th February 2019 from 10:00 to 14:00, at the Cultural Center “Melina Merkouri” at 66 Iraklidon st., in Athens. This year’s message by Eurordis “Bridging medical and social care” reflects our need for cooperation in order to empower, support and improve the quality of life of patients with rare diseases in Greece and has inspired us to create this event. ΔΕΛΤΙΟ ΤΥΠΟΥ -agglikaΠαγκ.Ημ.Σπαν.Παθη-1