Country |
Association |
Representative |
Email address |
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AUSTRIA |
Österreichische Rett-Syndrom Gesellschaft |
IRMGARD WENZEL |
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STELLA PECKARY |
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BELGIUM |
Belgische Rett Syndroom Vereniging |
JOHAN DELAERE |
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ANNA VERMEULEN |
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BOSNIA-HERZEGOVINA |
VASILJKO SKRIVAN |
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BULGARIA |
IVAN STEFANOV IVANOV |
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DIMITRINA HRISTOVA |
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CROATIA |
Rettov Sindrom Hrvatska |
ANAMARIA & DEAN IKAC |
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PETRA & SASA IKAC |
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CZECH REPUBLIC |
Rett Community |
BLANKA MUELLEROVA |
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DENMARK |
Landsforeningen Rett Syndrom |
PETER ADLER |
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JAN & KAREN NIELSEN |
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ESTONIA |
TIINA TALVIK |
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FINLAND |
LEENA & JORMA SYVAJARVI |
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FRANCE |
Association Française du Syndrome de Rett |
CHRISTIANE ROQUE |
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GERARD NGUYEN |
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GEORGIA |
ZURAB CHEKURASHVILI |
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GERMANY |
Elternhilfe für Kinder mit Rett-Syndrom |
HAMANN JUDITH |
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BÄRBEL ZIEGELDORF |
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GREECE |
VARTOUG BEKARIAN |
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HUNGARY |
Magyar Rett Szindróma Közhasznú Alapítvány |
EVA TABAI |
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KATALIN POKORNY |
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ICELAND |
Stuđningssíđa barna međ Rett heilkenni |
FRIDRIK FRIDIKSSON |
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IRELAND |
Rett Syndrome Association of Ireland |
NOREEN HARRINGTON |
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ANGIE FITZSIMONS |
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ITALY |
Associazione Italiana Rett |
LUCIA DOVIGO |
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OLIVIERO DELL'ORO |
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LATVIA |
INESE BELICKA |
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LITHUANIA |
VLADAS RATKEVICIUS |
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MALTA |
DENIS GALEA |
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MONTENEGRO |
SASA & SANJA VUKSANOVIC |
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NETHERLANDS |
Rett Syndroom Netwerk Nederland |
AXEL WIERTZ |
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NORWAY |
Norsk Forening for Rett Syndrom |
HANNE BLOM-BAKKE |
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HILDE FRIIS |
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POLAND |
Ogólnopolskie Stow. Pomocy Osobom z Zespolem Retta |
JANUSZ ROZALSKI |
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ALINA MIDRO |
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PORTUGAL |
Associação Nacional de Pais e Amigos Rett |
SANDRA MADEIRA |
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ROMANIA |
NORBERT DRAGUS |
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RUSSIA |
DMITRY & KATYA POUROVSKY |
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NIKOLAY & OLGA TIMOUTSA |
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SERBIA |
Ret Udruzenje Srbije |
BOJANA MIHAILOVIC |
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SNEZANA ILIC |
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SLOVAKIA |
MARIA SIMALJAK |
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RICHARD SIMALJAK |
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SLOVENIA |
TANJA ZAJC |
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SPAIN |
Associació Catalana de la Síndrome de Rett |
ALBERT FALGUERAS |
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TERESA AINOZA |
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Asociación Valenciana del Síndrome de Rett |
IGNACIO CANOS |
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SWEDEN |
Rett Syndrom i Sverige |
ULF HÄNELL |
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ROGER CEDERLÖF |
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SWITZERLAND |
Interessen-Gruppe Rett-Syndrom Schweiz |
TONY & JOANNA SNYDER |
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TURKEY |
Rett Sendromlu Aileler Dayanisma Dernegi |
SEYID AHTAM |
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ÜMIT COPCU |
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UKRAINE |
OLGA SACHENKO |
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UNITED KINGDOM |
Rett Syndrome Association UK |
RONALD JAFFA |
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YVONNE MILNE |
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| UMBRELLA ORGANISATION | Pro Rett Ricerca |
NICOLETTA LANDSBERGER |