Please take a moment for the ActivRett Survey from Telethon Kids Institute. Share your experiences in your daughter’s standing and walking activities. Your participation helps us understand what activities work, don’t work, are fun, and which activities enhance their quality of life. Your response helps us plan programs that focus on increasing physical activity, and after testing, we will build a free online resource to promote everyday activity in those with Rett syndrome.
Jenny Downs, on behalf of Michelle Stahlhut (Denmark), Meir Lotan (Israel), Cochavit Elefant (Israel) and Helen Leonard (Australia)