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Polish Summer Camp

By Eleonora Misiarz (eleonorabaran@wp.pl) The summer camp is organized regularly in June by the Polish Rett Association. Last couple of years we have been meeting in Mielno on the Polish Coast. The camps are a good opportunity to meet other parents and their kids. The idea for the meeting of the families is more to get […]

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RSE Seasons Greetings

May health and happiness be yours in all seasons!

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Rett UK bangs the drums for families in South East England

November 10th saw over 180 people from the South East of England, arriving at The School for Profound Education at the Children’s Trust in Tadworth. Families, specialist medical and therapeutic practioners, staff and board members of Rett UK took part in the largest gathering of the Rett Community in England for many years.   There […]

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The 2012 RSE General Assembly

  The 17th November took place the Rett Syndrome Europe general assembly in London, UK where Lorna Jaffa, representative from RettUK, welcomed the delegates to the meeting. 14 countries were represented that day and two researchers; Angus Clarke and Laurent Villard were also invited. Member countries each gave a brief report about their associations. Martine […]

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6th annual DIA Clinical Forum

DIA Clinical Forum in the Hague 2012 – A report from Danijela Szili For more info check http://www.pharmaceutical-technology.com/contractors/consult/dia1/ DIA is a neutral global nonprofit association that provides knowledge resources across the full spectrum of medicinal product development. It organizes Conferences and Forums for all the stakeholders including patient advocates. This years Clinical Forum took place […]

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