5. European Rett Syndrome Congress, 2.-4. November 2017, Berlin The unique ambience of the Rett Congress in Berlin: international experts in a cooperative interchange with concerned parents “Connecting people – exchanging knowledge and experience!“ This was the motto of the 5th European Rett Syndrome Congress, which took place at the beginning of November 2017 in […]
By Thomas Bertrand. During the first day, Councils of European Federations (CEF) and Councils of National Alliances (CAN) gathered in Paris to learn about the recent work from Eurordis (RareConnect, RareBarometer, an update from the Eurordis position paper on social policy and the announcement of the next ECRD in Vienna 2018). An Update on ERN […]
(from left to right: Danijela Szili, Yvonne Milne, Wilfried Asthalter, Stella Peckary, Caroline Lietaer) To succeed Thomas Bertrand as a president will be a honour and a challenging assignment. He was an excellent president and exceptional person. His mandate was over, we would have loved to keep him for many more years. I want […]
By Stella Peckary. Sept. 23rd, 2017 A small group of Rett-Parents with their children came together at the beautiful site of “Seminarhotel Kletzmayr” in Styria. Because of the warm weather the activities for the Rett-Girls and their siblings took place outside. The carers for the Rett-girls/boys are trained experts for impaired people and have been […]
Physician coordinator: Pr Nadia BAHI BUISSON, neuropediatrician Health Care Coordinator: Elisabeth CELESTIN Due to their multiple disability status, most families lack landmarks to identify professionals and have difficulties to organise path of care, which is often complicated and full of obstacles. The Rett Centre is there to accompany them. 1st mission: Care […]
Visit us on Facebook
There are no upcoming events at this time.