Rett Syndrome Europe is a non-profit making organisation.
The aim of RSE is to represent the interest of people with Rett syndrome and their families, especially in the following areas:

• To make Rett syndrome better known to the public, professionals, carers and those who are directly concerned in all European countries.
• To improve the communication within the European Rett community.
• To promote, as a representative European organisation, the interests of people with Rett syndrome and their families.
• To expand the RSE to all European countries and to assist, if necessary, in the creation of national associations.
• To promote research into Rett syndrome.

These aims are to be especially attained by:

• Co-operation with Rett syndrome associations within Europe and Worldwide.
• Co-operation with other relevant international and national institutions.
• Co-operation with other social groups.
• Exerting influence on decisions concerning legislation in relation to medical, health, and education in professional and social fields.

Membership is open to Rett syndrome associations from European States, as well as to Rett syndrome subgroups of umbrella organizations.