Board

Caroline Lietaer
France

President

Wilfried Asthalter
Germany

Treasurer

Danijela Szili
Hungary

General Secretary, RareConnect moderator and EURORDIS DITA Task Force member

Yvonne Milne
United Kingdom

Board member of ERN ITHACA and EURORDIS elected ePAG representative

Stella Peckary
Austria

Minutes Secretary and RareConnect moderator

Other precious Volunteers, non Boardmembers

  • Laura Kanapieniene: webmaster
  • Thomas Bertrand: international independent adviser Rett Syndrome Europe, former president
  • Gérard Nguyen: international independent adviser Rett Syndrome Europe, former president
  • Tim Addison: reviewer of Articles Rett Resource (English language) – R.I.P., our sincere condolences for your family.
  • Tim Lang: designer Rett Resource
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