On May 21, at the Centro Médico Teknon in Barcelona, took place the 6th Catalan Family day on Rett Syndrome. This year the meeting was entitled « The Future begins today ». During that day, patient representatives, researchers, medical doctors, directors of medical centres and officials from the Ministry of Health gathered in front of around 80 […]
Spasibo! – VIII World Congress on Rett Syndrome: Report
The 8th World Congress on Rett syndrome took place in the millennium city of Kazan in the Tatarstan republic of the Russian Federation. There, international scientists and doctors met families and Rett girls for 5 days. The congress program included a plenary session during the first days then parallel sessions the following days. Visits of […]
Next European Rett Syndrome Congress – Berlin 2017
Dear Rett Community, we herewith like to inform the Rett-Syndrome Family, that the German Rett-Syndrome Association will organize the next European Rett-Syndrome Congress (ERSC) in Germany. The Congress will be placed in Berlin from 02. – 04. November 2017. During this event the German Rett-Syndrome Association will celebrate their 30th years anniversary. Further information will follow in due time. […]
8th World Congress on Rett Syndrome – Registration continues!
By Olga Timutsa Dear Friends, please note that the registration for the World Congress on Rett syndrome to be held on 13-17 May 2016 in Russia, Kazan continues. All the necessary information can be found at worldcongress2016.rettsyndrome.ru Kazan is a beautiful and hospitable city with 1000 years of history. Many cultures, religions, traditions meet here in […]
8th World Congress on Rett Syndrome – Early bird registration ends January 17th
http://worldcongress2016.rettsyndrome.ru/en/registration/terms.php
4th European Congress on Rett Syndrome – Full report
The 4th European Congress on Rett syndrome took place in Rome during the last weekend of October. More than 400 participants were present. The congress was divided between poster sessions and two parallel sessions; one dedicated to researchers and clinicians talks, while the other was moderated by therapists, educators and teachers. In the therapists’ session, […]
4th European Congress on Rett Syndrome: final program
Dear friends, the final program of the upcoming European Congress on Rett Syndrome can be visualized at a glance on the congress website. A full printable brochure can also be downloaded here. See you in Rome!
RTT50.1: Celebrating the 50th anniversary of the first publication on Rett Syndrome by Andreas Rett
European Conference in Rome – a message from the RSE board members
Dear Members of the Rett Community, We are very proud to inform you that the next Rett Syndrome European Conference will take place in Roma from 30th of October to 1st of November 2015. This Conference is organized by the Italian Rett Syndrome parents Association AIRETT, with the help of Rett Syndrome Europe. On this occasion, we […]
Eurordis Membership Meeting 2015
By Danijela Szili. Each year, the EURORDIS Membership Meeting provides over 200 patients, patient organisations, policy makers and other stakeholders with networking opportunities and capacity-building workshops to improve the lives of those living with a rare disease. The EURORDIS Membership Meeting workshops are designed to allow patients to develop the knowledge and ability to advance […]