AAC: Send stories and pictures now!

Important message from Gill Townend and Gerna Scholte (Researcher and Augmentative & Alternative Communication Expert, Rett Expertise Centre Netherlands). Dear friends, Individuals with Rett syndrome can communicate clever, funny and spot on messages. We are hoping you have many stories to share with us. Over the last 5 years the number of individuals with Rett syndrome that […]

Please help maintaining the Rett Syndrome Database Network

Dear friends, As President of Rett Syndrome Europe, I am writing to you today to ask for your Association’s support for the European Rett database located in Italy: the Rett Syndrome Database Network (RSDN). The simple fact is that vital research on Rett syndrome or clinical trials cannot be easily achieved without collecting and analysing […]

A research consortium against RETT syndrome

PRESS RELEASE Milan, December 3, 2013 – It was held at the headquarters of the IRCCS – Istituto di Ricerche Mario Negri in Milan, the first operational meeting dell’AIRETT RESEARCH TEAM Consortium created by renowned Italian research institutes that are involved in a joint effort to study Rett Syndrome, a rare disease, little known to the general public, for […]

The 2012 World Rett Syndrome Congress

The 2012 World Rett Syndrome Congress, hosted for the first time in the United States, is a prestigious global meeting, attended by the world’s leading researchers, clinicians and educators in the field of Rett syndrome. It will consist of 4 distinct, yet interconnected meetings June 22-26, 2012. This dynamic program will help chart the course […]

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