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Capture d’écran 2017-06-11 à 15.53.07

EURORDIS Membership Meeting 2017 – Full report

By Danijela Szili. EURORDIS Membership Meeting 2017 This year’s membership meeting took place in Budapest from 19-20 May. It gathered around 300 participants from all over Europe and some from USA, Iran, India, Canada and China. It started with EURORDIS General Assembly for members only. As it is the case every year the Activity Report […]

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Capture d’écran 2016-07-30 à 16.30.32

Rett 2017 Berlin – early bird registration opened

Dear Friends, we are pleased to announce that the early bird registration is now accessible via the official website of the congress: http://www.rett2017.berlin RSE member representatives will soon receive instructions with a discount code for registration so please wait a few more days to receive the code and more details about the RSE General Assembly Meeting, via […]

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Rett university in Krakow, Poland 18 November 2017

The Polish Rett syndrome association is proud to organize the next Rett University featuring Susan Norwell, expert on alternative communication, during the event called “All Engaged, All Communicate, All Learn!”. A one-day day lecture followed by 2 days of consultation are on the program. Everyone is welcome to Krakow from 18 to 20 November 2017. […]

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AAC: Send stories and pictures now!

Important message from Gill Townend and Gerna Scholte (Researcher and Augmentative & Alternative Communication Expert, Rett Expertise Centre Netherlands). Dear friends, Individuals with Rett syndrome can communicate clever, funny and spot on messages. We are hoping you have many stories to share with us. Over the last 5 years the number of individuals with Rett syndrome that […]

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Capture d’écran 2017-03-15 à 22.59.29

Rett syndrome is in the ERN called ITHACA

European Reference Networks (ERN) have started this month! Check out this nice video on European Reference Networks for rare and complex diseases. As a reminder Rett syndrome is in the ERN called ITHACA, which stands for Intellectual disability, TeleHealth And Congenital Anomalies http://europa.eu/!Dc93bF

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