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Capture d’écran 2017-03-15 à 22.59.29

Rett syndrome is in the ERN called ITHACA

European Reference Networks (ERN) have started this month! Check out this nice video on European Reference Networks for rare and complex diseases. As a reminder Rett syndrome is in the ERN called ITHACA, which stands for Intellectual disability, TeleHealth And Congenital Anomalies http://europa.eu/!Dc93bF

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Communication services and support for Rett syndrome – a family survey

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We have a new RSE flyer to download and print

Dear Friends, We are proud to present our new flyer. Use it at you convenience. There is a light version for internet sharing or a large (report) version for professional printing. Spread Awareness!

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Rett Education NL: Two-day training course report

By Caroline Lietaer. An inspiring two-day training course was organised by the NRSV – Rett Syndrome Association Netherlands on 11 -12 November in Houten. Participating speakers included Hector Minto from Microsoft/Tobii, UK, Susan Norwell from Rett University USA and Gill Townend from Rett Expertise Centre Netherlands-Maastricht. The training course provided an opportunity for parents, speech […]

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Vienna RTT 50.1 – Full Report

By Danijela Szili. RTT 50.1 Vienna 15-17 September This was not my first Rett conference but was a very special one. It was not just about scientific sessions or sessions about clinical issues and communication but also about history of Rett syndrome. We witnessed many wonderful speeches from physicians, scientists and parents who were here […]

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