Rett Syndrome Europe

The Association of Parents and Friends of People with RETT Syndrome “Angels on Earth” is a non profit organisation, which aims to undertake every activity that will help people with RETT Syndrome and their parents. The association was created in 2011. The main goals of the association include: a) support and information for the families […]

Rett Syndrome Association of Australia is looking for potential presenters by tapping into the local knowledge of member Associations. We would welcome the names, contact details and specialities of those persons in your part of the world, whom it is strongly felt would have something to present which would be of benefit to those involved […]

            RSE held its general assembly on 26/10/2018 to present the activity report and to discuss future plans. This year’s GA meeting took place in Copenhagen, Denmark. Our friends from Landesforeningen Rett Syndroms hosted the meeting and kindly arranged the organisation of the two days To make it more interesting, […]

The French national days for Rett syndrome celebrated the 30 years anniversary of the French Rett Association. There were 223 participants. We could see in the corridor a nice overview of the history of the association. As usually the themes presented were very interesting: you can see the program in the picture. A surprising and […]

By RSE board member and ePAG Yvonne Milne The EURORDIS Winter School that took place in Paris in March was a great opportunity for those attending to share information and network with other rare disability group representatives. We soon learnt that we had so much in common, with shared values and missions. As a result […]

As a RSE Board member and ePAG patient representative for the ITHACA ERN, I was privileged to be invited to attend this new initiative, which was held at the IMAGINE Institute, Paris March 19 – 23. It was financed through the EU funded Solve-RD project, of which EURORDIS is a partner. The aim of the […]