La Course Des Héros 2015, Paris & Lyon, France

In Paris and Lyon, June 2015 took place the annual event of The Race of Heroes (La Course des Héros), where people can run 6 or 10 km to raise money for their favorite association. The idea is simple, to be able to run and support one association, one would need to raise at least […]

Read full story Comments are closed

Austrian Rett-Syndrome Association Family weekend

By Stella Peckary. This year again many Rett-families joined a common weekend. 19 Rett-Girls and boy had their own attendant. This gave us parents the chance to attend the program. We all were lucky with the weather, so many of the attendants took the chance to go for a walk with the girls. On Friday […]

Read full story Comments are closed

Eurordis Membership Meeting 2015

By Danijela Szili. Each year, the EURORDIS Membership Meeting provides over 200 patients, patient organisations, policy makers and other stakeholders with networking opportunities and capacity-building workshops to improve the lives of those living with a rare disease. The EURORDIS Membership Meeting workshops are designed to allow patients to develop the knowledge and ability to advance […]

Read full story Comments are closed

5th Catalan Rett Syndrome Day

The Quirón Foundation, with the help of the Catalan Association for Rett Syndrome, organized the fifth edition of the Conference on Rett syndrome, with the aim of providing care for girls, the necessary information for early diagnosis and better treatment of the disease. This new edition, which took place on Saturday, April 11 in Barcelona, […]

Read full story Comments are closed

Registration for the 4th European Congress on Rett Syndrome in Rome is now open

AIRETT and Rett Syndrome Europe are proud to announce that the registration for the 4th European Congress on Rett Syndrome (Roma, October 30th – November 1st 2015) is now OPEN!

Read full story Comments are closed
UA-61726373-1