Rett Syndrome Europe

  Representatives of the recently opened Rett Center in Paris and the Maastricht Rett Expertise Center meet together on 15/02/2018 with the president of Rett Syndrome Europe in Paris to discuss new ways of working together.   The team of Paris was represented by: Dr Nadia Bahi Buisson, Dr Marie Hully, Prof Brigitte Fauroux, Dr […]

Country update Berlin 2017 – by Stella Peckary A poster walk of 27 posters with a country update of 25 Rett-Association took place on Friday, during lunch time. A representative of each country was invited to speak briefly about recent activities, National Centres for Rare Diseases and Rett specialist services in his their country. The […]

By Thomas Bertrand. During the first day, Councils of European Federations (CEF) and Councils of National Alliances (CAN) gathered in Paris to learn about the recent work from Eurordis (RareConnect, RareBarometer, an update from the Eurordis position paper on social policy and the announcement of the next ECRD in Vienna 2018). An Update on ERN […]

(from left to right: Danijela Szili, Yvonne Milne, Wilfried Asthalter, Stella Peckary, Caroline Lietaer)   To succeed Thomas Bertrand as a president will be a honour and a challenging assignment. He was an excellent president and exceptional person. His mandate was over, we would have loved to keep him for many more years. I want […]