Rare Disease Day 2018
Rett Meeting Rome 27-29 September 2018

Rett Meeting Rome 27-29 September 2018

Italian foundation ProRett Reserca is organizing an international scientific meeting in Rome this year. For more details please check the website of the event: https://www.rettrome2018.org/

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Enhancing collaborations between Rett Centers

  Representatives of the recently opened Rett Center in Paris and the Maastricht Rett Expertise Center meet together on 15/02/2018 with the president of Rett Syndrome Europe in Paris to discuss new ways of working together.   The team of Paris was represented by: Dr Nadia Bahi Buisson, Dr Marie Hully, Prof Brigitte Fauroux, Dr […]

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Berlin Congress Report

Country update Berlin 2017 – by Stella Peckary A poster walk of 27 posters with a country update of 25 Rett-Association took place on Friday, during lunch time. A representative of each country was invited to speak briefly about recent activities, National Centres for Rare Diseases and Rett specialist services in his their country. The […]

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European Rett Syndrome Congress in Berlin

European Rett Syndrome Congress in Berlin

5. European Rett Syndrome Congress, 2.-4. November 2017, Berlin The unique ambience of the Rett Congress in Berlin: international experts in a cooperative interchange with concerned parents “Connecting people – exchanging knowledge and experience!“ This was the motto of the 5th European Rett Syndrome Congress, which took place at the beginning of November 2017 in […]

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Eurordis CEF Workshop 26-27 October 2017 report

By Thomas Bertrand. During the first day, Councils of European Federations (CEF) and Councils of National Alliances (CAN) gathered in Paris to learn about the recent work from Eurordis (RareConnect, RareBarometer, an update from the Eurordis position paper on social policy and the announcement of the next ECRD in Vienna 2018). An Update on ERN […]

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