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Rett university in Krakow, Poland 18 November 2017

The Polish Rett syndrome association is proud to organize the next Rett University featuring Susan Norwell, expert on alternative communication, during the event called “All Engaged, All Communicate, All Learn!”. A one-day day lecture followed by 2 days of consultation are on the program. Everyone is welcome to Krakow from 18 to 20 November 2017. […]

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AAC: Send stories and pictures now!

Important message from Gill Townend and Gerna Scholte (Researcher and Augmentative & Alternative Communication Expert, Rett Expertise Centre Netherlands). Dear friends, Individuals with Rett syndrome can communicate clever, funny and spot on messages. We are hoping you have many stories to share with us. Over the last 5 years the number of individuals with Rett syndrome that […]

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Rett syndrome is in the ERN called ITHACA

European Reference Networks (ERN) have started this month! Check out this nice video on European Reference Networks for rare and complex diseases. As a reminder Rett syndrome is in the ERN called ITHACA, which stands for Intellectual disability, TeleHealth And Congenital Anomalies http://europa.eu/!Dc93bF

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Communication services and support for Rett syndrome – a family survey

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We have a new RSE flyer to download and print

Dear Friends, We are proud to present our new flyer. Use it at you convenience. There is a light version for internet sharing or a large (report) version for professional printing. Spread Awareness!

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