Berlin Flyer
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SAVE THE DATE: 2-4 Nov 2017 – 5th European Rett Syndrome Congress in Berlin

For more information please have a look at http://www.rett2017.berlin  

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Rehabilitation camp for people with Rett Syndrome at Zabajka Hippotherapy and Rehabilitation Centre in Stawnica 2016

By Piotr Wójcik. On 3-16 June 2016, Polish Rett Syndrome Association organised a rehabilitation camp for children with Rett Syndrome at Zabajka Hippotherapy and Rehabilitation Centre in Stawnica. As many as 21 girls participated in this event. The youngest participant was 2.5 years old, whereas the oldest one was 11. Similarly as two years before, […]

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European Conference on Rare Diseases and Orphan Products 26-28 May 2016 (Edinburgh)

By Danijela Szili. Around 750 participants from the countries all over the globe gathered in Edinburgh at the EICC (Edinburgh International Conference Centre) for the EURORDIS Membership Meeting (EMM) and 8th European Conference on Rare Diseases and Orphan Products with a slogan Game Changers in Rare Diseases. The 26th of May was reserved for the […]

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28th French Rett Syndrome Association family weekend

For the 28th time, the Rett Syndrome French Association (AFSR) organised their family weekend days which took place in the “Center Parcs” of Sologne from 3 till 6 of June. 361 attended the weekend, 90 families, 83 Rett girls and 1 Rett boy. The families stayed in nice cottages surrounded by trees and had the opportunity to […]

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6th Catalan family day – “The future begins today”

On May 21, at the Centro Médico Teknon in Barcelona, took place the 6th Catalan Family day on Rett Syndrome. This year the meeting was entitled « The Future begins today ». During that day, patient representatives, researchers, medical doctors, directors of medical centres and officials from the Ministry of Health gathered in front of around 80 […]

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