Press conference on the presentation of the next World Congress on Rett syndrome

By Olga Timutsa. On January 30, 2015 in the Civic Chamber of the Russian Federation on the initiative of the Civic Chamber of the Republic of Tatarstan and the Association for Assistance to Rett syndrome patients the following events were held: 1. Press-conference on presentation of the World Congress on Rett syndrome in Russia 2. Roundtable on «Medical and social support and quality of life for girls with Rett syndrome» topic [...]

Read full story Comments are closed

Rett Syndrome Europe wishes you a happy holiday season

Wishing you warm holiday greetings from RSE

Read full story Comments are closed

We are Happy from AFSR

French Rett girls, joy, happiness and cool music! The French Rett Association (AFSR) is proud to share its own version of the “Happy” video clip from Pharell Williams. Enjoy! Rett Syndrome is the first cause of genetic multiple-disability hitting girls in France. There is no known cure as of today despite a better understanding of [...]

Read full story Comments are closed

Dankeschön! Read the 2014 RSE general assembly summary

On November 15 we held our annual General Assembly meeting of Rett Syndrome Europe in the beautiful city of Vienna. Our Austrian friends from ÖRSG hosted the meeting and kindly arranged the organisation of the day. We had the pleasure to have most of the European associations representing Rett syndrome present, plus the Russian Association, [...]

Read full story Comments are closed

RSE 2014 General Assembly in Vienna – UPDATE!

Dear Members of RSE, All members of the Rett Community are warmly invited to the next General Assembly of Rett Syndrome Europe that will take place in VIENNA – Austria on: Saturday 15th November 2014, 9 30 am Venue: Kolping Wien Zentral 1060 WIEN, Gumpendorfer Strasse 39 Seminar Room: Kardinal König Saal, Hausteil 2, Stiegengasse [...]

Read full story Comments are closed