We are happy to inform you that the next 2014 RSE general assembly will take place in the beautiful Austrian city of Vienna on November 15. Will you be attending? Please let us know by contacting Martine Gaudy. More details to come soon.
By Mgr. Mirka Tupa, translated by Mgr. Ivana Hanus (mum of Paulinka, RTT) Rett girl pupils at the primary school ZS Zahradka In the previous past years, seven girls with the Rett Syndrome (RTT) have been attending the primary school “Zahradka” in Prague. It is a rather unusual experience due to a frequency of occurrence [...]
Wishing you warm holiday greetings from RSE
PRESS RELEASE Milan, December 3, 2013 – It was held at the headquarters of the IRCCS – Istituto di Ricerche Mario Negri in Milan, the first operational meeting dell’AIRETT RESEARCH TEAM Consortium created by renowned Italian research institutes that are involved in a joint effort to study Rett Syndrome, a rare disease, little known to the general public, for [...]
ECRD 2014 - 8 to 10 May 2014 Andel’s Hotel, Berlin, Germany Save the date! more infos here.