The Quirón Foundation, with the help of the Catalan Association for Rett Syndrome, organized the fifth edition of the Conference on Rett syndrome, with the aim of providing care for girls, the necessary information for early diagnosis and better treatment of the disease. This new edition, which took place on Saturday, April 11 in Barcelona, […]
AIRETT and Rett Syndrome Europe are proud to announce that the registration for the 4th European Congress on Rett Syndrome (Roma, October 30th – November 1st 2015) is now OPEN!
The Athletics Marathon will be held in Kazan on May 10, 2015. As part of the Kazan marathon held Championship of Russia among the youth marathon. Championship of Russia among the youth marathon will be held in the framework of the Kazan marathon. There will be races for 42.195 km 21.097 km and 5 km. […]
The 4th Global Congress For Consensus in Pediatrics & Child Health (CIP2015) took place March 19-22 in Budapest, Hungary. Dr Gerard Nguyen was representing Rett Syndrome Europe, the French Rett Syndrome Association and the Hungarian Rare Diseases Alliance. Dr Nguyen gave a talk entitled “Rare Diseases: From Best Care to Innovative Cure”. The presentation pointed […]
By Olga Timutsa. On January 30, 2015 in the Civic Chamber of the Russian Federation on the initiative of the Civic Chamber of the Republic of Tatarstan and the Association for Assistance to Rett syndrome patients the following events were held: 1. Press-conference on presentation of the World Congress on Rett syndrome in Russia 2. Roundtable on «Medical and social support and quality of life for girls with Rett syndrome» topic […]