The Association of Parents and Friends of People with RETT Syndrome “Angels on Earth” is a non profit organisation, which aims to undertake every activity that will help people with RETT Syndrome and their parents. The association was created in 2011. The main goals of the association include: a) support and information for the families […]

9th World Rett Syndrome Congress, Australia – 30 September to 3 October 2020
Rett Syndrome Association of Australia is looking for potential presenters by tapping into the local knowledge of member Associations. We would welcome the names, contact details and specialities of those persons in your part of the world, whom it is strongly felt would have something to present which would be of benefit to those involved […]

Rett Syndrome Europe meets in Copenhagen
RSE held its general assembly on 26/10/2018 to present the activity report and to discuss future plans. This year’s GA meeting took place in Copenhagen, Denmark. Our friends from Landesforeningen Rett Syndroms hosted the meeting and kindly arranged the organisation of the two days To make it more interesting, […]

French Rett Syndrome Family Days – 06/10 and 07/10/2018 in Paris
The French national days for Rett syndrome celebrated the 30 years anniversary of the French Rett Association. There were 223 participants. We could see in the corridor a nice overview of the history of the association. As usually the themes presented were very interesting: you can see the program in the picture. A surprising and […]

Rett Rome Report
Rett Rome 2018 took place from September 27-29th and gathered 170 participants from 4 continents and 17 different countries. The aim of this very well organized scientific meeting on the 27th and 28th was to provide a platform for discussion on recent advances in basic, translational and clinical research on Rett syndrome. The meeting also […]
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Upcoming Events
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Greece: “Rare disease day 2019”
February 24 @ 10 h 00 min - 14 h 00 min -
Regional Family day UK South
March 22 @ 8 h 00 min - March 23 @ 17 h 00 min -
Annual Rett Associationmeeting Sweden
March 23 -
Belgian Rett Familyday
April 27 -
French Familyweekend
May 17 - May 20