Please help maintaining the Rett Syndrome Database Network

Dear friends, As President of Rett Syndrome Europe, I am writing to you today to ask for your Association’s support for the European Rett database located in Italy: the Rett Syndrome Database Network (RSDN). The simple fact is that vital research on Rett syndrome or clinical trials cannot be easily achieved without collecting and analysing […]

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Czech Republic Association family event

By Michal Kozisek. The 8th Rett Community Czech Family event took place from June 27th to July 4th at Hodonin near Kunstat in the Moravian region. We have set a record this year. More than 80 people – 15 families with Rett syndrome girls, 16 caretakers and other organisers. Rich 7-days programme contained: –          Presentations and workshops for […]

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European Conference in Rome – a message from the RSE board members

Dear Members of the Rett Community, We are very proud to inform you that the next Rett Syndrome European Conference will take place in Roma from 30th of October to 1st of November 2015. This Conference is organized by the Italian Rett Syndrome parents Association AIRETT, with the help of Rett Syndrome Europe. On this occasion, we […]

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La Course Des Héros 2015, Paris & Lyon, France

In Paris and Lyon, June 2015 took place the annual event of The Race of Heroes (La Course des Héros), where people can run 6 or 10 km to raise money for their favorite association. The idea is simple, to be able to run and support one association, one would need to raise at least […]

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Austrian Rett-Syndrome Association Family weekend

By Stella Peckary. This year again many Rett-families joined a common weekend. 19 Rett-Girls and boy had their own attendant. This gave us parents the chance to attend the program. We all were lucky with the weather, so many of the attendants took the chance to go for a walk with the girls. On Friday […]

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