A day on eye-gaze communication for professionals working with Rett Girls

By Martine Gaudy. A day on eye-gaze communication for professionals working with Rett Girls. On 6th of March 2014 took place in Paris, on the premises of the Rare Diseases Alliance, a day of presentation of techniques and devices for eye gaze dedicated to Rett girls. I had the chance to discover this technology during [...]

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Come Closer: a photo exhibition and auction for the Girls with Rett Syndrome

By Danijela Szili. In July 2013 a special venture has taken place in the organization of the Hungarian Rett Syndrome Foundation. We have envisioned a series of 10 photographs, each illustrating a famous actor and a girl with Rett syndrome. Our purpose on one hand is to raise awareness about this rare genetic disease, and also to [...]

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RSE 2014 General Assembly in Vienna

We are happy to inform you that the next 2014 RSE general assembly will take place in the beautiful Austrian city of Vienna on November 15. Will you be attending? Please let us know by contacting Martine Gaudy. More details to come soon.

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Life at school in Czech Republic for Rett girls

By Mgr. Mirka Tupa, translated by Mgr. Ivana Hanus (mum of Paulinka, RTT) Rett girl pupils at the primary school ZS Zahradka In the previous past years, seven girls with the Rett Syndrome (RTT) have been attending the primary school “Zahradka” in Prague. It is a rather unusual experience due to a frequency of occurrence [...]

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Rett Syndrome Europe wishes you a happy holiday season

Wishing you warm holiday greetings from RSE

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