By Martine Gaudy. A day on eye-gaze communication for professionals working with Rett Girls. On 6th of March 2014 took place in Paris, on the premises of the Rare Diseases Alliance, a day of presentation of techniques and devices for eye gaze dedicated to Rett girls. I had the chance to discover this technology during [...]
By Danijela Szili. In July 2013 a special venture has taken place in the organization of the Hungarian Rett Syndrome Foundation. We have envisioned a series of 10 photographs, each illustrating a famous actor and a girl with Rett syndrome. Our purpose on one hand is to raise awareness about this rare genetic disease, and also to [...]
We are happy to inform you that the next 2014 RSE general assembly will take place in the beautiful Austrian city of Vienna on November 15. Will you be attending? Please let us know by contacting Martine Gaudy. More details to come soon.
By Mgr. Mirka Tupa, translated by Mgr. Ivana Hanus (mum of Paulinka, RTT) Rett girl pupils at the primary school ZS Zahradka In the previous past years, seven girls with the Rett Syndrome (RTT) have been attending the primary school “Zahradka” in Prague. It is a rather unusual experience due to a frequency of occurrence [...]
Wishing you warm holiday greetings from RSE