AIRETT Congress – 1st and 2nd June 2019

AIRett devoted the first two days of June to its periodical National Congress organized this year in Cervia – “New Borders in Rett Syndrome: a Glance towards the Future” – with novel therapeutic international strategies being the main theme of the Conference. Rett families as well as experts interested in the syndrome (more than 250 […]

Congratulations to dr Gillian Townend with her PHD

We congratulate Dr. Gillian Townend with her successful PhD defense the 4 th of July at the University of Maastricht Rett Syndrome: “Recognising the Communication Challenges, Needs and Potential of Individuals Living with a Rare Disease” It was an honour to be there and we would like to express our gratitude in name of all […]

Rett Disorders Alliance Health Checklist

The Rett Disorders Alliance UK (Reverse Rett, Rett UK and FOXG1) are delighted to bring you The Rett Syndrome Health Checklist. The Health Checklist provides information to help with symptom identification and management including suggestions for drugs which may help and those which may cause difficulties for people with Rett syndrome. There are also links […]

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