General Assembly 2022

Please join us for our General Assembly 26th November 10am to 1.30pm CET The invitation with relevant papers and registration link have been emailed to our members. Please contact us in case you haven´t received it and would like it to be resent. Membership Fees – Many thanks to the organisations that have responded already to our call […]

New Course from Meir Lotan

Physiotherapy and Health Promotion for Individuals with Rett Syndrome Very experienced and knowledgeable specialist physiotherapist Meir Lotan will be teaching this course between the 19th September – 20th October 2022. The lessons, in English, will be held twice weekly on Mondays and Thursdays at Israeli hours 16:00-21:00The cost is 550$ per student. The recorded lectures […]

Network Support and Research Event coming soon!

We are delighted that Rett Syndrome Europe has been successful with their funding application for  29,976 Euros to the European Joint Programme for Rare Diseases Network Support Scheme. The main meeting will be held in Budapest, Hungary with satellite meetings in the UK, Netherlands, Serbia, Georgia, Armenia, Croatia and Turkey. The meetings will be on […]

Running for Rett!

Many thanks to Claudia Petzold, Rett Syndrom Deutschland e.V. for this great awareness raising event which you can get involved in wherever you are! Take the idea Make it specific to your organisation Choose where the funds raised will be donated 17 Sept – 15 Oct 2022 Featuring in Global Rett Syndrome Awareness Month an […]

Airett Conference

Airett are delighted to announce that after an absence of two years they will be hosting a hybrid event on 10th and 11th June 2022. THE THEMES OF THE CONFERENCE Scientists and researchers will provide updates on the latest clinical trials and what is on the horizon. A special attention will be paid to the […]

General Assembly 2021

Please join us for our General Assembly 27th November 10am to 1.30pm CET The agenda and invitation with relevant papers have been emailed to our members. Please contact us in case you haven´t received it and would like it to be resent. We are delighted that two members of the Scientific Advisory Board will be […]

Hungarian Rett summer camp vibes

The Hungarian Rett Syndrome Foundation has been organizing therapeutic summer camps for girls with Rett Syndrome every year since 1995. This year they took place in Hajdúszoboszló on two occasions in July and August. Organizing a holiday with activities for the children is an important part of the foundation’s parental support programs, because during the summer […]

A busy May for RSE!

Feels like a rush hour! In just a few weeks we´ve participated in 3 different events: May 12-14 – EURORDIS Membership meeting During this 3 days online event different countries and representatives of various rare diseases shared their thoughts, struggles and experiences of this extraordinary pandemic year. Despite all the challenges of COVID we all […]

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