In RSE we understand that research is essential for overcoming Rett Syndrome one day. We also know that it is one of the main topics of interest for families and everyone who faces Rett in their life. Therefor, RSE is taking new actions to keep you up to date with all relevant information regarding research in Rett Syndrome.
Scientific Advisory Board
Rett Syndrome Europe are delighted to announce we now have a Scientific Advisory Board!
Scientific Advisory Board members are:
Gill Townend – Chair of SAB Aglaia Vignoli, Ana Abdala, Anne-Marie Bisgaard, Bernd Wilken, Bojana Milanov, Danijela Szili, Helena Wandin, Jean-Christophe Roux, Meir Lotan, Michelle Stahlhut, Peter Marschik, Sonia Guil.
Information on clinical trials is constantly changing, but we will be posting latest updates in our research blog to keep you up to date as much as possible on the latest advancements. However, for the full list of complete information on clinical trials in Rett Syndrome, please visit the link below:
11th May 2023 Taysha have shared a press release with news about their gene therapy for Rett syndrome. Taysha has completed screening and scheduled dosing for the first potential participant in the Phase 1/2 REVEAL …
In their press release dated 28th March 2023 Taysha shared important updates to their gene therapy programme for Rett syndrome. Read the full press release here. Taysha has initiated screening of the first potential participant …
We are delighted that the Rett Syndrome Europe Network Support and Research Event was so successful. Many thanks to our funders The European Joint Programme for Rare Diseases Network Support Scheme and our sponsors Anavex, …
Spring 2022 has been very productive season for Rett scientists bringing hope to our families. We are happy to share some exciting news with our community. 29th March 2022 Taysha gene therapies annoucned that their …
AIRETT is delighted to announce its second international call for base, clinical and rehabilitation research projects on Rett syndrome. They believe that the work of different research centres (even with international collaborations) could help speed …
Could Trofinetide be the first drug to be approved specifically to treat Rett syndrome? On 7th December 2021, Neuren announced positive 'top line' results for from the Phase 3 trial in Rett syndrome. The drug …
Lots of families are considering whether their daughter/son with Rett syndrome should have the booster Covid jab. Here Ana Abdala, member of our Scientific Advisory Board, gives her view which we hope you will find …
"Hello! My name is Usree Bhattacharya and I am mom to a 5-year-old girl, Kalika, with Rett syndrome, and a faculty member in the College of Education at the University of Georgia (US). My training …
Date: Tuesday, January 19Time: 1-2:30pm (EST) For the last 16 years, the NIH-funded Natural History Study for Rett Syndrome has been collecting data from over 1000 Rett families. Hear from NHS Principal Investigators, Drs. Alan Percy, Jeffrey …
We are excited to announce that Professor Huda Zoghbi and Professor Sir Adrian Bird have been awarded The Brain Prize 2020, worth 10 million Danish kroner. The Brain Prize 2020 was awarded for their fundamental …
