Research

In RSE we understand that research is essential for overcoming Rett Syndrome one day. We also know that it is one of the main topics of interest for families and everyone who faces Rett in their life. Therefor, RSE is taking new actions to keep you up to date with all relevant information regarding research in Rett Syndrome.

Scientific Advisory Board

Rett Syndrome Europe are delighted to announce we now have a Scientific Advisory Board!

Scientific Advisory Board members are:

Gill Townend – Chair of SAB
Aglaia Vignoli, Ana Abdala, Anne-Marie Bisgaard, Bernd Wilken, Bojana Milanov, Danijela Szili, Goran Cutilo, Helena Wandin, Jean-Christophe Roux, Meir Lotan, Michelle Stahlhut, Peter Marschik, Sonia Guil

Clinical Trials

Information on clinical trials is constantly changing, but we will be posting latest updates in our research blog to keep you up to date as much as possible on the latest advancements. However, for the full list of complete information on clinical trials in Rett Syndrome, please visit the link below:

ClinicalTrials.gov


Research news

RettEd: How Your Child’s Data is Shaping the Future of Rett Research
Date: Tuesday, January 19Time: 1-2:30pm (EST) For the last 16 years, the NIH-funded Natural History Study for Rett Syndrome has been collecting data from over 1000 Rett families. Hear from NHS Principal Investigators, Drs. Alan Percy, …
Professor Huda Zoghbi and Professor Sir Adrian Bird have been awarded The Brain Prize 2020
We are excited to announce that Professor Huda Zoghbi and Professor Sir Adrian Bird have been awarded The Brain Prize 2020, worth 10 million Danish kroner. The Brain Prize 2020 was awarded for their …

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