Member Associations
The European network of Rett family associations.
National associations and contributors across Europe — supporting families, sharing knowledge, and advancing research together.
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Highlighted countries have a Rett Syndrome association or contact in our network. Click any one to jump straight to their details below.
1 organisation multiple organisations individual contributor
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Alphabetical by country. Click any logo, email or website to reach the association directly.
Armenia
Individual contributorMarina Parazyan
Austria
1 organisation
Österreichische Rett-Syndrom Gesellschaft
Belgium
1 organisation
Belgische Rett Syndroom Vereniging v.z.w
Bosnia and Herzegovina
Individual contributorDraženko Marić
Croatia
1 organisation
Tihi Anđeli
Cyprus
Individual contributorRett syndrome: Κύπρος, Kıbrıs
Czech Republic
1 organisation
Spolek rodičů a přátel dívek s Rettovým syndromem
Denmark
1 organisation
Landsforeningen Rett-syndrom
Finland
1 organisation
Rett Finland
France
1 organisation
AFSR – Association Française du Syndrome de Rett
Georgia
1 organisation
Georgian Rett syndrome and other rare diseases Association
Germany
2 organisations
RETT Deutschland e.V. Elternhilfe für Kinder mit Rett Syndrom

Rett-Syndrom e.V., Deutsche Rett-Syndrom Gemeinschaft
Greece
2 organisations
Reverse Rett Greece

ΑΓΓΕΛΟΙ ΓΗΣ
Hungary
1 organisation
Magyar Rett Szindróma Alapítvány
Iceland
1 organisationRett Syndrome Rannsóknarsjóður Guðrúnar
Ireland
1 organisation
The Rett Syndrome Association of Ireland
Italy
1 organisation
A.I.Rett – Associazione Italiana Rett
Latvia
Individual contributorInga Pavlova
Lithuania
1 organisation
Agotos labdaros ir paramos fondas
Luxembourg
1 organisation
Association Luxembourgeoise du Syndrome de Rett
Macedonia
1 organisationRett Sindrom Makedonija
Malta
Individual contributorRett Syndrome Malta
Montenegro
Individual contributorRet sindrom: Crna Gora
Netherlands
1 organisation
Nederlandse Rett Syndroom Vereniging
Norway
1 organisation
Norsk Forening for Rett Syndrom
Poland
1 organisation
Ogólnopolskie Stowarzyszenie Pomocy Osobom z Zespołem Retta
Portugal
1 organisation
Associação Nacional de Pais e Amigos Rett (ANPAR)
Russia
Individual contributorAndrey Pavlov
Serbia
Individual contributorRet udruzenje Srbije
Slovakia
1 organisationRettovým Syndrómom Slovensko
Slovenia
Individual contributorLucija Zizmund
Spain
3 organisations
Asociació Catalana de la Síndrome de Rett

Asociación Española de Síndrome de Rett

Asociación Princesa Rett
Sweden
1 organisation
RSIS (Rett Syndrom i Sverige)
Switzerland
1 organisation
Rett Verein Schweiz
Turkey
1 organisation
Rett Türkiye
Ukraine
Individual contributorElena Khatina
United Kingdom
2 organisations
Rett UK
