Network Support and Research Event Registration – Replays Available!

We are delighted that the Rett Syndrome Europe Network Support and Research Event was so successful. Many thanks to our funders The European Joint Programme for Rare Diseases Network Support Scheme and our sponsors Anavex, Taysha, Neurogene and Neuren for making this possible. Also thanks to our country hosts in Turkuye, Hungary, UK, Netherlands, Serbia, Croatia and Georgia for all their hard work in organising their meetings and translating all the presentations, and of course to all the presenters. The event has reached 730 people so far!

But don’t worry if you were not able to join us live, you can still watch all the replays from the event website. If you already registered then just go to the website and click on Replays.

Not yet registered? Sign up here.

Members of Rett Syndrome Europe (RSE) Scientific Advisory Board (SAB) and others are presenting to parent carers, clinicians, therapists and researchers, with opportunities for discussion and Q&As.

The event aims to improve the quality of life for people with Rett syndrome and their families in countries where support, information and advice is lacking. We hope it will encourage new research collaborations, particularly in areas where there are gaps in knowledge. With the prospect of a transformative treatment within reach, the development of patient organisations to facilitate clinical trial recruitment and engagement with EMA and regulatory bodies is crucial.

This is a free event – view the programmes and sign up, choosing from one of 7 languages to view the presentations with subtitles when the event goes live, or at a time of your choosing after 17 18 March 2023.

Network Support and Research Event Registration – Replays Available!
Scroll to top