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Rett-Syndrom Grafik (nur Hände) -Trans aussen

Austrian Rett-Syndrome Association (ÖRSG) Family Weekend 2018

On the weekend from June 22nd to 24th 2018 the yearly family weekend took place in the wonderful surroundings of Attersee-Lake and the pre-alpine landscape. Nearly 100 attendants – parents, Rett-girls, Rett-boy, siblings, carers and speakers were very pleased and appreciated the “come together” of the Rett-families. During the Board meeting on Friday afternoon, the […]

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Rett Meeting Rome 27-29 September 2018

Rett Meeting Rome 27-29 September 2018

Italian foundation ProRett Reserca is organizing an international scientific meeting in Rome this year. For more details please check the website of the event: https://www.rettrome2018.org/

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29th French National Rett Days

By Thomas Bertrand. 29th French National Rett Days On 7Th and 8th October took place the French National Rett Days. During the weekend around 250 people gathered in Paris to meet and listen to scientific talks and participated to workshops. Professor Milh (Hopital La Timone – Marseille) started the weekend with a full story about […]

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European Rett Syndrome Congress, Berlin: connecting people – sharing knowledge

CALL FOR ABSTRACTS – DEADLINE EXTENDED Scientific knowledge at the highest levels; experts from Europe, the USA and Australia, and affected families in an exchange of ideas The deadline for abstracts has been extended until 31.08.2017 Genetics and research, transition and aging, activities and participation, pain, orthopedics and physiotherapy as well as new treatment options… […]

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The actual situation and tendencies in Research: Santander 2017 – Highlights

By Thomas Bertrand. SANTANDER (Spain) 10-13.07.2017 In the Beautiful city of Santander, at the historical Palace of Magdalena, took place a conference on Rett Syndrome. The aim of the conference was to refocus the fundraising in the country for research on Rett syndrome in creating a common fund between the Spanish and Catalan associations: FINRETT. […]

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