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Rett-Syndrom Grafik (nur Hände) -Trans aussen

Austrian Rett-Syndrome Association (ÖRSG) Family Weekend 2018

On the weekend from June 22nd to 24th 2018 the yearly family weekend took place in the wonderful surroundings of Attersee-Lake and the pre-alpine landscape. Nearly 100 attendants – parents, Rett-girls, Rett-boy, siblings, carers and speakers were very pleased and appreciated the “come together” of the Rett-families. During the Board meeting on Friday afternoon, the […]

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RSE is represented at the inaugural Eurordis Winterschool Paris, march 2018

As a RSE Board member and ePAG patient representative for the ITHACA ERN, I was privileged to be invited to attend this new initiative, which was held at the IMAGINE Institute, Paris March 19 – 23. It was financed through the EU funded Solve-RD project, of which EURORDIS is a partner. The aim of the […]

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Enhancing collaborations between Rett Centers

  Representatives of the recently opened Rett Center in Paris and the Maastricht Rett Expertise Center meet together on 15/02/2018 with the president of Rett Syndrome Europe in Paris to discuss new ways of working together.   The team of Paris was represented by: Dr Nadia Bahi Buisson, Dr Marie Hully, Prof Brigitte Fauroux, Dr […]

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