eupati-ffm2012_8_20120921_1776291576

First EUPATI Workshop

EUPATI (European Patients’ Academy on Therapeutic Innovation), is a 5 year-project funded by the Innovative Medicines Initiative (IMI), a joint undertaking of the European commission and EFPIA (European Federation of Pharmaceutical Industry Associations). It is led by the European Patients’ Forum (EPF) in collaboration with the VFA (Verband der Forschenden Arzneimittelhersteller, Germany) and a consortium […]

Read full story Comments are closed
OLYMPUS DIGITAL CAMERA

Rett family conference in Moscow

On September 15th, in Moscow, the Russian association has organised a Rett family conference day where parents, doctors and teachers were invited. 65 Parents coming from all places in Russia as well as from Ukraine and from Kazakhstan were involved. Some Rett Friends from France and Finland were also present. Organizers of the conference were […]

Read full story Comments are closed
554226_465777286783418_991448517_n

Summer Camp for Rett Girls in Hungary

By Danijela Szili. This event took place during the first week of July in a little town called Agard on the Velencei Lake near Budapest. The Hungarian Rett Syndrome Foundation made this special holiday for Rett girls possible. We rented a house near the beach on the lake. The house was well equipped, with enough […]

Read full story Comments { 0 }
DSCF3514_940x350_scaled_cropp

RSE and Rett Syndrome Associations from all over the world were present at the 7th World Rett Syndrome Congress in New Orleans

RSE and Rett Syndrome Associations from all over the world were present at the 7th World Rett Syndrome Congress in New Orleans. Rett Syndrome Europe was present at the 7th World Rett Syndrome Congress hosted by IRSF, International Rett Syndrome Foundation, in New Orleans. RSE was represented by Martine Gaudy, RSE Secretary and Thomas Bertrand, […]

Read full story Comments { 0 }
dna-cloud

For Clinicians and Scientists : Rett Syndrome Networked Database

Rett Syndrome Networked Database is a tool of great value to both the scientific and the clinical RTT community More : www.rettdatabasenetwork.org and download PDF

Read full story Comments { 0 }
UA-61726373-1