As we gear up for the upcoming General Assembly Meeting, we invite passionate individuals who share our commitment to the Rett syndrome community to consider contributing to the organisation by joining the board. We seek members who are not only driven by a passion for Rett syndrome but also possess skills that can fuel our growth. We are also specifically seeking an individual with financial skills to take on the crucial role of Treasurer.
Why Join?
This year’s General Assembly Meeting is particularly significant as the current term of some board members is concluding, creating vacancies for dedicated individuals to step in. We envision a future marked by even greater strides in our shared mission to empower and uplift the Rett syndrome community. As new treatments emerge and developments unfold, our path will be intertwined with an increasing need for active engagement with the European Medicines Agency (EMA) and other pivotal stakeholders. This enhanced collaboration will be essential to ensure that the voices and needs of our community resonate on the grander stage, shaping the landscape of treatments and care.
Expression of Interest:
If you’re driven by a passion for Rett syndrome and possess skills that can fuel our growth, we invite you to submit an Expression of Interest. We are also specifically seeking an individual with financial skills to take on the vital role of Treasurer.
Deadline for Expression of Interest: October 2, 2023.
To Apply:
Please email us at info@rettsyndrome.eu with the following:
- Your relationship with Rett syndrome (personal, professional, or otherwise).
- Skills or expertise that can benefit Rett Syndrome Europe and the entire Rett community.
- Your motivation and vision for joining the board (up to 500 words).
- A photo of yourself that we can use to introduce you to the community before and during the event.
Please note that participation in RSE General Assembly meeting will be obligatory for the candidates. We will provide an option to participate virtually via MS Teams if necessary, although we strongly recommend presential participation if possible.
Shape the Future:
Your Expression of Interest will play a pivotal role in helping us shape the future of Rett Syndrome Europe and its endeavors. Together, we can navigate these exciting times of pharmaceutical and genetic treatment development. We deeply value your input and involvement, and your participation is crucial to our collective success.
General Assembly Meeting:
Join us on the 8th of October, 2023, from 15:00 to 16:30 CET at the venue of the 7th European Rett Syndrome Conference in Marseille, France. It’s an opportunity to collaborate, share your vision, and contribute to a brighter future for individuals and families affected by Rett syndrome.
Agenda for the GA:
Have Questions?
If you have any questions or need further information, please do not hesitate to contact us at info@rettsyndrome.eu.
Thank you for your unwavering support, dedication, and commitment to the Rett syndrome community.
