Latest news

Call for RSE membership update

Dear Friends, As you are aware, RSE recently appointed a new board. We have been busy over the last couple of months reviewing things and thinking about future work etc. We are very keen to hear from our members; what is important to you, how can RSE help you and your families, what sort of […]

Rare Disease Day 2021

28th of February is Rare Disease Day! Today we take the opportunity to join a global community raising awareness of rare diseases. 1:17 people will be affected by a rare disease in their lifetime. View the official Rare Disease Day video: Rett Syndrome is one of Rare diseases. It affects 1:10,000 females and 1:40,000 males. […]

Russian Rett Syndrome Association – October Awareness Event

In the framework of the project of the Russian Rett Syndrome Association (2020-2021, No. 20-1-027505, Directorate: Development of Public Diplomacy) “Mutual Support: International Cooperation on behalf of Children”, the project team visited Minsk, Belarus on 24-27 October 2020. The Russian project team, consisting of the coordinator, director, operator and medical expert, was in Minsk at […]

RSE executive board changes

On the 21st of November RSE General Assembly faced a big challenge – to form a new executive board that will be leading RSE for the next 3 years. Specific board positions were assigned during the first newly elected board meeting that took place last night. We are pleased to announce the freshly formed team […]

Save the date!

We are happy to share the announcement of an online conference organized by Rett UK with an amazing group of international Rett experts. It’s open to anyone – parents and professionals – and it’s free to attend! Presentations will be recorded and free to access after the event for the registered participants. Don’t miss your […]

Release of Rett Syndrome Communication Guidelines

We are happy to share the news from Rett Expertise Centre Netherlands-GKC and Rettsyndrome.org about the release of the NEW Rett Syndrome Communication Guidelines: A handbook for therapists, educators and families. The digital download is free and can be downloaded as many times as you need.You can choose to download the complete handbook or individual […]

Overview interesting Resources in Covid times

Rett Syndrome Europe is happy to give you an overview of the interesting resources which are available and organized by different associations in different languages in these period of lockdown ALL LANGUAGES Free games in all languages:  Gazeplay is a free and open-source software which gathers several mini-games playable with an eye-tracker : https://github.com/GazePlay/GazePlay ENGLISH […]

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