Author: Laura Kanapieniene

Release of Rett Syndrome Communication Guidelines

We are happy to share the news from Rett Expertise Centre Netherlands-GKC and Rettsyndrome.org about the release of the NEW Rett Syndrome Communication Guidelines: A handbook for therapists, educators and families. The digital download is free and can be downloaded as many times as you need.You can choose to download the complete handbook or individual […]

World Rett Syndrome Congress Rescheduled

Due to the current pandemia of COVID-19 that the world is fighting over the past months, Australian Rett Syndrome Association had to take a difficult decision and postpone the World Congress that was scheduled later this year. We share their message and hope to see each other again in 2021. Dearest Rett Families and Friends, […]

ActivRett Survey from Telethon Kids Institute

Please take a moment for the ActivRett Survey from Telethon Kids Institute. Share your experiences in your daughter’s standing and walking activities. Your participation helps us understand what activities work, don’t work, are fun, and which activities enhance their quality of life. Your response helps us plan programs that focus on increasing physical activity, and […]

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